Papillary Thyroid Cancer: An Inquiring Patient's Guide


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GENERAL DISCLAIMER
This site is designed for informative purposes only and is not engaged in rendering medical advice or professional services. The author has no medical training. The information provided through this site should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.
© Julia Lawrence 1999

= my favourite links (based on information quality, readability, and ease of use).

I. Thyroid Cancer
II. The Thyroid The Thyroid Society Lots of info on thyroid and thyroid diseases.
American Thyroid Association
Thyroid doctor
Thyroid Related Web sites links
Medscape Diabetes & Endocrinology Home Page Requires registration
British Thyroid Foundation address for info
Thyroid Disease / The Low Iodine Diet -- The Mining Company
Pregnancy, Fertility and Infertility With Thyroid Disease - Thyroid Disease Net Links
Thyroid Disease Site by Mary Shomon - Mining Company (Basic Browser Version)
Thyroid Disease Newsletter #5 - September 5, 1997 - Thyroid Disease
Thyroid Disease - Definitive Collection of Net Links
Thyroid Disease and Pregnancy / Part One - Thyroid Disease - 06/30/97
Endocrine Diseases: thyroid, parathyroid adrenal and diabetes.
Thyroid Disease Information Source -- Sticking Out Our Necks, Thyroid Disease News Report Mary Shomon's home page
Merck ThyroWare Very cool downloadable software in English and German - but not for beginners!
III. Cancer CancerNet Information from the National Cancer Insitute
Oncolink Cancer information from the University of Pennsylvania
Resources on Cancer Info for press, patients, etc including pictures, statistics. Look especially at the information for physicians.
Intellihealth Johns Hopkins Health information, including cancer site. Winner of a 1999 Webby Award.
Center for Alternative Medicine Research in Cancer Provides both simple and detailed summaries of alternative therapies. Not indexed by cancer type, unfortunately, and can be very slow to load. A site search will turn up nothing on thyroid disease - use the databases.
Mayo Clinic Sources, Q&A, headlines etc
CancerBACUP Information for patients, based in the UK.
IV. Cancer Trials
New!
Phase I Study of Combretastatin A4 Phosphate in Patients with Solid Tumors NCI study of a drug which has apparently cured one patient with anaplastic thyroid cancer. This specific case is not dealt with at this site - this is for those interested in knowing about or joining the trial. An article about the thyroid cancer case was formerly found at CNN Health, but sadly has been removed. Bear in mind that papillary and anaplastic thyroid cancers are not the same.
Clinical Trials from OncoLink, provided by the University of Pennsylvania. Lists trials at UPenn as well as others. Includes an email service to update you on current trials.
Clinical Trials from the NIH. Another large resource of clinical trials information, providing both doctor and patient summaries. Includes a sophisticated search engine.
V. Support Thyca.org Support Links. An excellent selection of support groups on email and in local areas.
CancerHelp Comprehensive Cancer Resources On The Internet
VI. Statistics NCDB for thyroid cancer Article on National Cancer Data Base (NCDB) statistics on thyroid cancer
SEER Cancer Statistics Review, 1973-1993
National Center of Health Statistics
VII. Reference Neck Dissection, a very clear explanation from the Virginia Medical Center
On-line Medical Dictionary
PubMed Access to Medline abstracts (medical literature)
SYNTHROID Information from the manufacturers of this brand of T4 (thyroxine).
CANCERLIT
CANCERLIT endocrine cancer.
Internet Grateful Med Access to Medline, Toxline, and other literature sources
New England Journal of Medicine A leading US journal. Look for the editorial on "One Hormone or Two" - an interesting development in the thyroid hormone therapy debate. You can sign up for free access to content more than six months old.
QuackWatch A very opinionated survey of non-standard sources of information
Levothyroxine Sodium Use, description, warnings, interactions, dosage, etc
OMNI Internet-based resources for UK medical, biomed and health communities
The British Library Leading UK library
The Lancet Leading British medical journal. Requires registration
HospitalWeb International hospital listings
Library of Congress Leading US library
The BMA Library Library of the British Medical Association
MedicineNet Home Page Patient information
Merck Publications Merck Manual - extracts from the "Home Edition"
The National Center for Biotechnology Information Research into genetics
VIII. General Health Sites Mayo Clinic Health Oasis - a patient-oriented site covering information on a broad variety of diseases. Winner of the "People's Voice" award for the "Health" category in the 1999 Webby Awards.
John's Hopkins Intelihealth - a phenomenal source for intelligence, news, advice, and even shopping. The judges' choice in the "Health" category of the 1999 Webby Awards.
The Health Centre (UK) - a site designed like a doctor's waiting room, with a "clinic", "library", and other useful resources. UK-oriented but with something of interest for everyone.
Bandolier: a site devoted to evidence-based medicine. Covers the evidence for many treatments or preventive measures (though none relating to thyroid disorders). Intended for a professional audience, but written very clearly so a lay person can understand the conclusions (if not, say, the statistical methods). Highly recommended.
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    Contact the author of this site at julia_lawrence@papthyca.com.

    Last updated on 13 August 2000.